Liam Rempel may never come to realize how the community responded to his situation, but his parents know.
The infant, born on Jan. 28 suffering from holoprosencephaly (HPE), was the focus of Liam’s Walk for Hope Saturday at the Granbury City Park. The event, also intended to raise awareness of the brain malformation disorder, raised about $5,000 to help the family – mom Kristy Rempel and dad Joey Rempel. HPE awareness T-shirts and wristbands were sold.
“It was breathtaking,” Joey Rempel said of the response. “It was absolutely incredible the amount of people who showed up, and the love and support from here and other places.”
Family friend Amada Barree, who helped organize the event, estimated that 100 people attended.
“He’s touched a lot of people,” Barree said. “We were pleased to have everyone there.”
HPE is caused by failure of the embryonic forebrain to sufficiently divide into the normal double lobes.
Joey said that a couple of weeks ago, doctors at Cook Children’s Medical Center told them that Liam might have “about a month” to live.
Liam had been in Cook’s for most of the time since his birth, except for 10 days, his dad said. On April 8, they decided to bring him home to stay so he could be more comfortable, Joey said.
Joey said family members are hoping they are wrong about that like they were some other predictions, Joey said. Earlier they were told that Liam would not be able to see, hear or eat by mouth.
Now, as Joey said, “he does ’em all.”
People from all over have been finding out about Liam through a Facebook page, “Liam Jackson Rempel.” Joey said Liam has 16,000 Facebook friends. Last week alone there were 55,000 people who viewed the page, he said.
The Rempels live in the Meander Estates subdivision, and Joey works in sales at Van Griffith Kia in Granbury. Donations to help the family can still be given, either through the link on Liam’s Facebook page, or via email ([email protected])f you have a PayPal account, Barree said. Call 512-966-6772.
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